We are enjoying a cool front right now..last week it was in the upper 90's all week. My hubby had long pants and a sweatshirt on yesterday! It was cloudy and very breezy, but today it's warm and sunny!
I am very sesitive to the baraometer so when it's hot and humid my body feels like it was hit by a ton of bricks! My joints feel like they are swollen but they aren't, I have no energy to speak of, I could sleep for 10 hrs and still feel tired! The pain I can live with..I have for almost 25 years now..the exhaustion wears me out! I hate that no matter how long I sleep I still feel like I could sleep longer! I hate telling my kids no when they want to do something and I have no energy to do it with them.. I hate that I have to "manage" my energy because once it's gone..it's gone and it takes me days to recover when I do too much. I hate the mental fog that is prevalent most days..It takes me a while to find the words I want to say, especially when I am trying to explain something! It's very frustrating!!
The hardest thing about having Fibromyalgia is that you look "normal" on the outside, but on the inside you are not! I hate that people don't understand that jsut because you look fine doesn't mean you are having a good day!
My daughter told me that someone who will remain nameless called me lazy! Lazy I am not! There are days that I can't do anything but there are also days that I do more then my fair share!
I am grateful for my husband who understands to a point. I don't think he knows truly what my day is like because I push myself to do the things I need to do. I try not to complain, I put a smile on my face and I go on. What else am I suppose to do?? I am the back bone to my family! I do everything!! I don't know any other way. I have lived with Lyme Disease and Fibromyalgia for 25 years now. I don't know what it's like to not to hurt, to have energy to spare, to be able to sleep restfully, to be able to think clearly. This is the way it is..regardless of how I think about it!
I've had to give up an 18 year career in EMS because of the pain and the weakness I have all the time now. I can no longer carry a stretcher or a stair chair..I feel that it was in the best interest of my health and safety that I give it up..I hate that I have!! I loved the Rescue Squad so much but I knew in my heart that I needed to stop! Since we have moved to WV I can't work anyway with my NJ cert. I have found a new career which I have had a passion about for 10 years now! I am a scrapbook instructor for Michaels and for a private store. I LOVE it!!
When God closes a door He always opens another..I know for a fact that he does!!
I am very sesitive to the baraometer so when it's hot and humid my body feels like it was hit by a ton of bricks! My joints feel like they are swollen but they aren't, I have no energy to speak of, I could sleep for 10 hrs and still feel tired! The pain I can live with..I have for almost 25 years now..the exhaustion wears me out! I hate that no matter how long I sleep I still feel like I could sleep longer! I hate telling my kids no when they want to do something and I have no energy to do it with them.. I hate that I have to "manage" my energy because once it's gone..it's gone and it takes me days to recover when I do too much. I hate the mental fog that is prevalent most days..It takes me a while to find the words I want to say, especially when I am trying to explain something! It's very frustrating!!
The hardest thing about having Fibromyalgia is that you look "normal" on the outside, but on the inside you are not! I hate that people don't understand that jsut because you look fine doesn't mean you are having a good day!
My daughter told me that someone who will remain nameless called me lazy! Lazy I am not! There are days that I can't do anything but there are also days that I do more then my fair share!
I am grateful for my husband who understands to a point. I don't think he knows truly what my day is like because I push myself to do the things I need to do. I try not to complain, I put a smile on my face and I go on. What else am I suppose to do?? I am the back bone to my family! I do everything!! I don't know any other way. I have lived with Lyme Disease and Fibromyalgia for 25 years now. I don't know what it's like to not to hurt, to have energy to spare, to be able to sleep restfully, to be able to think clearly. This is the way it is..regardless of how I think about it!
I've had to give up an 18 year career in EMS because of the pain and the weakness I have all the time now. I can no longer carry a stretcher or a stair chair..I feel that it was in the best interest of my health and safety that I give it up..I hate that I have!! I loved the Rescue Squad so much but I knew in my heart that I needed to stop! Since we have moved to WV I can't work anyway with my NJ cert. I have found a new career which I have had a passion about for 10 years now! I am a scrapbook instructor for Michaels and for a private store. I LOVE it!!
When God closes a door He always opens another..I know for a fact that he does!!
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